Who Am I

Welcome to this rollercoaster

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Hi there my name is Mikayla and I’m a wife and mom of two amazing boys. I have a forever 3 1/2 month old baby who was taken to heaven sooner than I had hoped. And an 8 month old sweet little red headed baby boy.

I’m a full time stay at home parent. And I never could have asked for anything else.

In this blog I want to tell my story with my life, essentially. So I will explain our story with rare genetic syndromes and how we overcame the battles of everyday life with a baby who is losing his own battle with it.

I will ask so be explaining how my life has changed since the loss of our sweet boy and how it has made me grow from the person I once was to who I am today.

• Getting ready to bring Hayden homeJune 17, 2024
  We had a family/care team meeting, and we talked about taking Hayden home. Everything the doctors were doing for Hayden they said we could do at home. We knew he was… Read more: Getting ready to bring Hayden home
• (no title)April 22, 2024
  We had so many family members coming to see Hayden some came every day some came when they were not working,but I remember my mom, sister and I went to target… Read more: (no title)

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